FG Syndrome Family Alliance, Inc.
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When will there be a molecular diagnosis available to help in family planning?
The wait is difficult and sometimes painful, but progress is being made. Several scientists are currently working on the molecular genetics of the FG syndrome.
This has been an especially exciting time for families affected by FG Syndrome, as one of at least five gene locations of the FG phenotype have been pinpointed by Drs. Stevenson, Schwartz and their colleagues at the Greenwood Genetics Center in North Carolina, resulting in testing for the "FGS1" location. Additionally, there are several other studies promising to result in further isolation of FG gene locations ("FGS2," "FGS3," etc.) in the near future.
There are families in the FG Syndrome Family Alliance who have chosen to extend their families in a variety of ways. If you are interested in speaking with a mentor family about your options in family planning, please contact us.
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Disclaimer: This page was not created by a medical professional. Any errors should
be reported immediately to info@fg-syndrome.org.FG Syndrome Family Alliance, Inc., 2009
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